How do we use your data?

The Medical Research Council is the sponsor for this study, based in the United Kingdom. University College London (UCL), through the MRC Clinical Trial Centre at UCL, will be using information from you and your medical records in order to undertake this study and will act as data controller for this study. UCL will be responsible for looking after your information and using it properly. UCL will keep identifiable information about you for 25 years after the study has finished.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally – identifiable information possible.

You can find out more about how we use your information at www.ctu.mrc.ac.uk/general/privacy-policy.

Confidentiality

Confidentiality of patient data is very important in clinical trials. In a trial, all medical records are confidential. This information is kept securely, and only a very limited number of people have access to it. Participants’ names, or details that could help others identify individual participants, are not used in any reports about the trial.